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Use","cbbc92f5-75b9-43f2-bb63-099a395c91a0",{"url":500,"title":501,"id":502,"internal":115,"route":11},"\u002Fsq-1\u002Fen\u002Fprivacy-policy","Politique de confidentialité","6dfe2fad-2575-43d3-9bb1-356432696c73",{"url":504,"title":505,"id":506,"internal":115,"route":11},"\u002Fsq-1\u002Fen\u002Fethics-compliance","Éthique et conformité","2f365644-f316-4f48-b969-f0d2472bf895",{"route":508},{"__typename":509,"breadcrumbs":510,"entity":518},"RouteInternal",[511,514,515],{"title":512,"url":513,"internal":115},"Accueil","\u002Fsq-1\u002Fen",{"title":360,"url":359,"internal":115},{"title":516,"url":517,"internal":115},"Toutes les nouvelles","\u002Fsq-1\u002Fen\u002Fnews\u002Farticles",{"metatag":519,"id":121,"translationOutdated":115,"translations":559,"title":123,"path":124,"status":115,"typeArticle":127,"uuid":122,"image":563,"datePublication":578,"chapeau":579,"body":581,"categorie":584,"articleParagraphe":590},[520,525,529,532,533,537,540,544,548,552,556],{"__typename":521,"tag":522,"attributes":523},"MetaTagValue","meta",{"content":123,"name":524},"title",{"__typename":521,"tag":522,"attributes":526},{"content":527,"name":528},"À Santé Québec – CHU Sainte-Justine, des parents d’enfants polyhandicapés bénéficient désormais du soutien de parents qui ont vécu la même expérience. Le soutien est offert directement à l’hôpital, pendant les rendez-vous et les hospitalisations. Grâce aux résultats positifs du projet pilote, le programme fait maintenant partie de l’offre de soutien aux familles.","description",{"__typename":521,"tag":522,"attributes":530},{"content":527,"name":531},"abstract",{},{"__typename":534,"tag":522,"attributes":535},"MetaTagProperty",{"content":123,"property":536},"og:title",{"__typename":534,"tag":522,"attributes":538},{"content":527,"property":539},"og:description",{"__typename":534,"tag":522,"attributes":541},{"content":542,"property":543},"https:\u002F\u002Fsite-sq-ws.sitesq.apps.ti.sante.quebec\u002Fsq-1\u002Fensites\u002Fsq-1\u002Ffiles\u002F2026-02\u002Fog-image.jpg","og:image",{"__typename":534,"tag":522,"attributes":545},{"content":546,"property":547},"image\u002Fjpg","og:image:type",{"__typename":534,"tag":522,"attributes":549},{"content":550,"property":551},"1200","og:image:width",{"__typename":534,"tag":522,"attributes":553},{"content":554,"property":555},"630","og:image:height",{"__typename":534,"tag":522,"attributes":557},{"content":20,"property":558},"og:image:alt",[560,561],{"title":123,"path":124},{"title":123,"path":562},"\u002Fsq-1\u002Factualites\u002Fnouvelles\u002Fdes-parents-pour-epauler-dautres-parents-sante-quebec-chu-sainte-justine",{"__typename":15,"id":133,"name":134,"mediaImage":564},{"mime":19,"title":11,"alt":123,"width":136,"height":137,"size":138,"url":139,"focalPoint":565,"large":566,"small":572},{"x":141,"y":142},[567],{"name":568,"url":569,"height":570,"width":571},"GRAND_ENTETE_ARTICLE","https:\u002F\u002Ffichier.sitesq.apps.ti.sante.quebec\u002Fsq-1\u002Fstyles\u002Fgrand_entete_article\u002Fpublic\u002F2026-07\u002FPair_aidance.jpeg.webp?h=8c1344d8&itok=kDcb4LdA",1404,2092,[573],{"name":574,"url":575,"height":576,"width":577},"PETIT_ENTETE_ARTICLE","https:\u002F\u002Ffichier.sitesq.apps.ti.sante.quebec\u002Fsq-1\u002Fstyles\u002Fpetit_entete_article\u002Fpublic\u002F2026-07\u002FPair_aidance.jpeg.webp?h=8c1344d8&itok=c9c5Nrc8",572,718,{"time":126},{"value":580},"\u003Cp>À Santé Québec – CHU Sainte-Justine, des parents d’enfants polyhandicapés bénéficient désormais du soutien de parents qui ont vécu la même expérience. Le soutien est offert directement à l’hôpital, pendant les rendez-vous et les hospitalisations. Grâce aux résultats positifs du projet pilote, le programme fait maintenant partie de l’offre de soutien aux familles.\u003C\u002Fp>",{"value":582,"summary":109,"processed":583,"format":91},"\u003Ch2>\u003Cstrong>Un soutien offert par des parents qui sont passés par là\u003C\u002Fstrong>\u003C\u002Fh2>\u003Cp>Le programme repose sur la pair-aidance. Autrement dit, un parent qui a déjà traversé une épreuve accompagne une famille qui la vit à son tour aujourd’hui. \u003C\u002Fp>\u003Cp>Il s’adresse aux parents d’enfants polyhandicapés. Ces enfants ont par exemple d’importantes difficultés à bouger, à communiquer et à apprendre, et ont besoin de soins au quotidien.\u003C\u002Fp>\u003Cp>Santé Québec – CHU Sainte-Justine réalise ce programme avec \u003Ca href=\"https:\u002F\u002Fetoiledepacho.ca\u002F\">L’Étoile de Pacho\u003C\u002Fa>. Cet organisme de la région de Montréal soutient les familles d’enfants malades ou polyhandicapés.\u003C\u002Fp>","\u003Ch2>\u003Cstrong>Un soutien offert par des parents qui sont passés par là\u003C\u002Fstrong>\u003C\u002Fh2>\n\u003Cp>Le programme repose sur la pair-aidance. Autrement dit, un parent qui a déjà traversé une épreuve accompagne une famille qui la vit à son tour aujourd’hui. \u003C\u002Fp>\n\u003Cp>Il s’adresse aux parents d’enfants polyhandicapés. Ces enfants ont par exemple d’importantes difficultés à bouger, à communiquer et à apprendre, et ont besoin de soins au quotidien.\u003C\u002Fp>\n\u003Cp>Santé Québec – CHU Sainte-Justine réalise ce programme avec \u003Ca href=\"https:\u002F\u002Fetoiledepacho.ca\u002F\">L’Étoile de Pacho\u003C\u002Fa>. Cet organisme de la région de Montréal soutient les familles d’enfants malades ou polyhandicapés.\u003C\u002Fp>\n",[585],{"id":130,"name":131,"weight":586,"uuid":587,"status":115,"path":588,"description":589},4,"cddbcd80-4d05-450c-b876-568e63435431","\u002Fsq-1\u002Fen\u002Ftaxonomy\u002Fterm\u002F54",{"value":11},[591,602,632],{"__typename":592,"id":593,"fieldAnchor":11,"citation":594,"couleurArrierePlan":596,"uuid":600,"status":115,"source":601},"ParagraphCitation","1941",{"value":595},"\u003Cp>« Depuis que ma femme est accompagnée par l'équipe de L'Étoile de Pacho, je vois qu'elle est plus heureuse quand elle revient de l'hôpital. Avant, elle était triste. Je l'entendais parfois pleurer la nuit. Maintenant, elle va mieux, car elle se sent soutenue. »\u003C\u002Fp>",{"__typename":597,"id":456,"name":598,"codeHex":599},"TermCouleurArrierePlan","Beige #F2EEEC","#F2EEEC","989c390c-f310-4e9d-9217-01329a49afce","Le témoignage d'un papa",{"__typename":603,"id":604,"fieldAnchor":11,"titreLongImage":605,"description":606,"cta":11,"image":609,"listeImbriquee":11},"ParagraphTexteImage","1943","Une présence directement à l’hôpital",{"format":91,"processed":607,"value":608},"\u003Cp>L’équipe de L’Étoile de Pacho est présente deux à quatre jours par semaine. Elle intervient sur rendez-vous, mais aussi de façon spontanée, selon les besoins.\u003C\u002Fp>\n\u003Cp>\u003Cstrong>Un parent pair-aidant peut accompagner une famille à plusieurs moments :\u003C\u002Fstrong>\u003C\u002Fp>\n\u003Cul type=\"disc\">\n\u003Cli>une visite à l’urgence;\u003C\u002Fli>\n\u003Cli>un rendez-vous de suivi;\u003C\u002Fli>\n\u003Cli>une opération ou une hospitalisation. \u003C\u002Fli>\n\u003C\u002Ful>\n\u003Cp>\u003Cstrong>Son aide prend plusieurs formes :\u003C\u002Fstrong>\u003C\u002Fp>\n\u003Cul type=\"disc\">\n\u003Cli>écouter et rassurer;\u003C\u002Fli>\n\u003Cli>prendre des notes pendant un rendez-vous;\u003C\u002Fli>\n\u003Cli>aider à formuler des questions;\u003C\u002Fli>\n\u003Cli>faire le pont après un rendez-vous;\u003C\u002Fli>\n\u003Cli>soutenir la famille dans la défense de ses droits.\u003C\u002Fli>\n\u003C\u002Ful>\n","\u003Cp>L’équipe de L’Étoile de Pacho est présente deux à quatre jours par semaine. Elle intervient sur rendez-vous, mais aussi de façon spontanée, selon les besoins.\u003C\u002Fp>\u003Cp>\u003Cstrong>Un parent pair-aidant peut accompagner une famille à plusieurs moments :\u003C\u002Fstrong>\u003C\u002Fp>\u003Cul type=\"disc\">\u003Cli data-list-item-id=\"eebfb6dd36c4e5171ffd5862f3ce4162e\">une visite à l’urgence;\u003C\u002Fli>\u003Cli data-list-item-id=\"e78fc6a8e2f04a7bed2cb4be0b18d52c2\">un rendez-vous de suivi;\u003C\u002Fli>\u003Cli data-list-item-id=\"e03d9de8692bbd6a46c2849a4f23b40c5\">une opération ou une hospitalisation. \u003C\u002Fli>\u003C\u002Ful>\u003Cp>\u003Cstrong>Son aide prend plusieurs formes :\u003C\u002Fstrong>\u003C\u002Fp>\u003Cul type=\"disc\">\u003Cli data-list-item-id=\"ecd572c5f42212f25ea8ba5d698aa4447\">écouter et rassurer;\u003C\u002Fli>\u003Cli data-list-item-id=\"e5000ae2347abde5efbda9ed633aeb7df\">prendre des notes pendant un rendez-vous;\u003C\u002Fli>\u003Cli data-list-item-id=\"e937a5c4a65140b7a16196c1f1b8381ca\">aider à formuler des questions;\u003C\u002Fli>\u003Cli data-list-item-id=\"ef39e407107bac425ad36436d119f178c\">faire le pont après un rendez-vous;\u003C\u002Fli>\u003Cli data-list-item-id=\"eef7b753926056ccc54119c867f4a5f91\">soutenir la famille dans la défense de ses droits.\u003C\u002Fli>\u003C\u002Ful>",{"__typename":15,"id":610,"name":611,"mediaImage":612},"438","0847e4f3-fd4b-46ee-bb2a-69dc33daa39d.jpeg",{"mime":19,"title":11,"alt":613,"width":614,"height":615,"size":616,"url":617,"focalPoint":618,"large":621,"small":627},"CHU Sainte-Justine & L’Étoile de Pacho",3024,2268,1363723,"https:\u002F\u002Ffichier.sitesq.apps.ti.sante.quebec\u002Fsq-1\u002F2026-07\u002F0847e4f3-fd4b-46ee-bb2a-69dc33daa39d.jpeg",{"x":619,"y":620},1512,1134,[622],{"name":623,"url":624,"height":625,"width":626},"GRAND_PARAGRAPH_TEXTE_IMAGE","https:\u002F\u002Ffichier.sitesq.apps.ti.sante.quebec\u002Fsq-1\u002Fstyles\u002Fgrand_paragraph_texte_image\u002Fpublic\u002F2026-07\u002F0847e4f3-fd4b-46ee-bb2a-69dc33daa39d.jpeg.webp?h=8637822a&itok=AYFa93-N",1580,1188,[628],{"name":629,"url":630,"height":631,"width":577},"PETIT_PARAGRAPH_TEXTE_IMAGE","https:\u002F\u002Ffichier.sitesq.apps.ti.sante.quebec\u002Fsq-1\u002Fstyles\u002Fpetit_paragraph_texte_image\u002Fpublic\u002F2026-07\u002F0847e4f3-fd4b-46ee-bb2a-69dc33daa39d.jpeg.webp?h=8637822a&itok=jId1x5tf",975,{"__typename":603,"id":633,"fieldAnchor":11,"titreLongImage":634,"description":635,"cta":11,"image":638,"listeImbriquee":656},"1944","Comment en bénéficier",{"format":91,"processed":636,"value":637},"\u003Cp>Le soutien est offert par le \u003Ca href=\"https:\u002F\u002Fetoiledepacho.ca\u002Fnos-programmes-daide\u002Fprogramme-daccompagnement-chusj\u002F\">Programme d'accompagnement de L'Étoile de Pacho au CHU Sainte-Justine\u003C\u002Fa>. La demande se fait de préférence 48 heures avant le rendez-vous, de trois façons :\u003C\u002Fp>\n\u003Cul type=\"disc\">\n\u003Cli>En ligne : en remplissant le \u003Ca href=\"https:\u002F\u002Fetoiledepacho.ca\u002Fnos-programmes-daide\u002Fprogramme-daccompagnement-chusj\u002F#form_section\">formulaire d'accompagnement\u003C\u002Fa>;\u003C\u002Fli>\n\u003Cli>Par téléphone : 514 798-6173, option 2\u003C\u002Fli>\n\u003Cli>Par courriel : \u003Ca href=\"mailto:accompagnement@etoiledepacho.ca\">accompagnement@etoiledepacho.ca\u003C\u002Fa>.\u003C\u002Fli>\n\u003C\u002Ful>\n","\u003Cp>Le soutien est offert par le \u003Ca href=\"https:\u002F\u002Fetoiledepacho.ca\u002Fnos-programmes-daide\u002Fprogramme-daccompagnement-chusj\u002F\">Programme d'accompagnement de L'Étoile de Pacho au CHU Sainte-Justine\u003C\u002Fa>. La demande se fait de préférence 48 heures avant le rendez-vous, de trois façons :\u003C\u002Fp>\u003Cul type=\"disc\">\u003Cli data-list-item-id=\"ec5a343e1271ab55fe3334c95ab75e780\">En ligne : en remplissant le \u003Ca href=\"https:\u002F\u002Fetoiledepacho.ca\u002Fnos-programmes-daide\u002Fprogramme-daccompagnement-chusj\u002F#form_section\">formulaire d'accompagnement\u003C\u002Fa>;\u003C\u002Fli>\u003Cli data-list-item-id=\"e6b8cffbe929013610b2a326dd1ac85b3\">Par téléphone : 514 798-6173, option 2\u003C\u002Fli>\u003Cli data-list-item-id=\"e418a275cbdc2b2d4d5a46e877b98b141\">Par courriel : \u003Ca href=\"mailto:accompagnement@etoiledepacho.ca\">accompagnement@etoiledepacho.ca\u003C\u002Fa>.\u003C\u002Fli>\u003C\u002Ful>",{"__typename":15,"id":639,"name":640,"mediaImage":641},"439","5f92d123-6804-42aa-ba15-78eccd6bc0c1.jpg",{"mime":19,"title":11,"alt":642,"width":643,"height":644,"size":645,"url":646,"focalPoint":647,"large":650,"small":653},"CHU Sainte-Justine & L’Étoile de Pacho_2",2048,1664,353166,"https:\u002F\u002Ffichier.sitesq.apps.ti.sante.quebec\u002Fsq-1\u002F2026-07\u002F5f92d123-6804-42aa-ba15-78eccd6bc0c1.jpg",{"x":648,"y":649},1024,832,[651],{"name":623,"url":652,"height":625,"width":626},"https:\u002F\u002Ffichier.sitesq.apps.ti.sante.quebec\u002Fsq-1\u002Fstyles\u002Fgrand_paragraph_texte_image\u002Fpublic\u002F2026-07\u002F5f92d123-6804-42aa-ba15-78eccd6bc0c1.jpg.webp?h=f55d0c55&itok=NfUqQk76",[654],{"name":629,"url":655,"height":631,"width":577},"https:\u002F\u002Ffichier.sitesq.apps.ti.sante.quebec\u002Fsq-1\u002Fstyles\u002Fpetit_paragraph_texte_image\u002Fpublic\u002F2026-07\u002F5f92d123-6804-42aa-ba15-78eccd6bc0c1.jpg.webp?h=f55d0c55&itok=WUyuREoZ",[657],{"__typename":658,"id":659,"fieldAnchor":11,"titreLongListeSimple":660,"description":661,"cta":11},"ParagraphListeSimple","1949","Un soutien qui complète celui du réseau ",{"format":91,"processed":662,"value":663},"\u003Cp>Ce programme s'ajoute au soutien déjà offert aux familles suivies à Santé Québec – CHU Sainte-Justine. L'accompagnement par les pairs vient épauler le travail des équipes de soins, sans le remplacer.\u003C\u002Fp>\n\u003Cp>Le projet pilote a duré 18 mois avant l'implantation officielle. Depuis, une quarantaine de familles ont été accompagnées.\u003C\u002Fp>\n","\u003Cp>Ce programme s'ajoute au soutien déjà offert aux familles suivies à Santé Québec – CHU Sainte-Justine. L'accompagnement par les pairs vient épauler le travail des équipes de soins, sans le remplacer.\u003C\u002Fp>\u003Cp>Le projet pilote a duré 18 mois avant l'implantation officielle. Depuis, une quarantaine de familles ont été accompagnées.\u003C\u002Fp>",1783712553250]